Kadi Lubi ”The role of information search and interpretation in living with chronic illness. The case of Estonian Parkinson’s disease patients”. On 10 October at 15.00 Kadi Lubi will defend her doctoral thesis ”The role of information search and interpretation in living with chronic illness. The case of Estonian Parkinson’s disease patients” in the Council of the Institute of Social Studies.
Professor Triin Vihalemm (PhD), Professor Pille Taba (dr. med.)
Professor Valentina Marinescu (PhD), University of Bucharest (Romania)
Description of the problem
Ageing population has raised new challenges to Western societies. There are more and more people suffering from one or more chronic conditions during a considerable time of their lives. Society members must get used to living with illness(es) in today’s society. It is very important to support people during the adaptation period as well as their living with chronic illness. Experts are involved and action plans are developed for political changes, whereas communication plays a central role in the formation of values and attitudes. The aim of the dissertation is to explain the factors related to information behaviour supporting or hindering the management of illness-related physical, psychological and social changes during the life with chronic illness on the example of Parkinson’s disease patients.
Result and benefit
The theoretical frame is based on the social practice theory that opens health and illness communication in a strong relation with a person’s environmental and bodily aspects as well as lifestyle. The findings show that people use different information searching and interpretation strategies depending on the previous media usage habits, existing lifestyle and the duration of the illness. Unlike current information provision system, people expect to get information gradually and situationally in order to adjust their existing habits smoothly. People also wish to discuss some information searched for independently. Future perspectives should involve more assistance and experience counselling through specialized nurses and peer patients.